Sunday, August 29, 2010

Update

Well, we have tried to get back to life as normal around here, but the reality is that it's just not normal. No matter how I try, I am still consumed with medication, purees, and trying to get my son to eat. He takes prilosec and prednisone in the am, and prilosec and singulair in the pm. In a few weeks, we'll be starting the long term steroid that he will remain on for 3 months. It's pulmicort (the inhaled steroid) only instead of inhaling it, he'll be swallowing it. That will also be twice a day. Making 2 in the am and 3 in the pm. It doesn't seem that bad, except right now he doesn't want to take meds, and the prilosec has to be given 30 minutes before he eats in the morning. The pulmicort will be the same way.

He is still a terrible eater. He could have whatever table food he would eat, but he just won't eat. He has gone back to his mainstays...puffs, crackers, cereal bars. He has started to eat toast occasionally, and still eats a good amount of purees and yogurt. The bulk of his calories come from the 20+ ounces of milk with carnation instant breakfast he drinks each day.

We have an appointment with the eosinophilic esophagitis (EE) clinic on September 13th for patch testing (for food allergies) and our initial consult with all the docs. That will be a rough day, as Andrew was already scheduled to have his eye stent removed that morning at 9:45, and then we have to meet with all the docs at 12:30. All downtown. Not easy to do all that and still find a time for him to nap and eat. Oh well, we'll figure it out.

Allison is doing great. Other than her sassy attitude, she's my sweetheart. She's been pretty defiant lately. Stomping her little feet and declaring that "no, I will not." I love that she's got spunk, and someday I hope that defiance keeps her out of trouble, but in the meantime, it's awfully hard to parent a child that says she doesn't care if she misses snack, "that's ok, I'll just wait until dinner," and doesn't care about spankings, "that's ok, I'll just go play pirates with grandma and grandpa after that." She's definitely got her momma's mouth!

Jason is hard at work and school. We have busy weekends, but it all works out. My work is going great. The schedule is going well. I have just taken on the task of organizing meals for Awana's every Wednesday night. If any Cov. Chap. ladies (or gentlemen) are reading...need your help people!

Hope you all had a blessed weekend. Small group tonight. Can't wait for some Pioneer Woman blueberry cobbler!

Valerie

2 comments:

katherine said...

Poor Andrew on all that medicine. Hopefully it will just be short term.

As always, let us know how we can help.

Kara said...

Yes, I recall some defiant words coming from a certain sister of mine...I shudder to think about my future little ones..